Alpha-1 Antitrypsin Deficiency

• Alpha-1 National Association (USA)Alpha1 National Association, a non-profit, membership organization, dedicated to improving the lives of individuals and their families affected by alpha1-antitrypsin deficiency.
• Alpha One Foundation (USA) The Alpha One Foundation is the only national research organization solely dedicated to developing the means to cure and control Alpha1-antitrypsin deficiency and to improve the quality of life for those with the disorder.
• Robin Musketts Alpha Site (UK) Robin Muskett has been involved in supporting sufferers with A1AD in the UK for seveal years.
• Alpha-1 International Mailing ListA mailing list where Alphas can find information and support worldwide. Owned and maintained by an Alpha Claude Baril. AlphaLink works to improve the online communications and support for the Alpha1 International Community.
• A.S.S.I.S.T. Alpha-1 Support System for Information Sharing and Thriving is an information mailing list set up to support the carers of patients with A1AD.
• Puerto Rico Alpha 1 Support Group This is the site for the A1AD Spanish Homepage from the Puerto Rico Alpha 1 Support Group organised by Elaine Alfonzo.
• Second Wind Lung Transplant Association (USA)To improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years. This organisation maintains an active mailing list.
• American Lung Association (USA)Since 1904, the American Lung Association has been working to ensure that all Americans breathe easier. Our mission is to prevent lung disease and promote lung health.
• C.O.P.D. Mailing List (USA)The mailing list, and thus this web page, was established to bring together people affected by COPD (Chronic Obstructive Pulmonary Disease). It is here to help us communicate with one another; to share ideas and knowledge; to support one another; and to live longer, better quality lives.
• National Emphysema Foundation (USA) Since 1971, The National Emphysema Foundation (NEF) has worked to improve the quality of life of those who have emphysema, asthma,and related diseases through education, research and direct patient care.
• E.F.F.O.R.T.S. (USA)EFFORTS is a non-profit organization that actually works to promote research for emphysema and related lung diseases. It also provides a very vital support mailing list and educational resources for members.
• Childrens Liver Disease FoundationIn 1980, the Children's Liver Disease Foundation was the first charity to be established concerned with liver disease. Today it leads the field in caring for babies and children with liver disease and their families

For books on this subject try searching the Barnes and Noble Bookstore. It's not "Books in Print" ...... But it's pretty Close!

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