Fanconi Anemia

• International Fanconi Anemia Registry (IFAR)
• Fanconi Anemia Research Fund We publish the FA Family Newsletter and FA Science Letter twice a year, sponsor the annual Fanconi Anemia Family Meeting, and provide telephone, e-mail, and letter support to patients and their families in 38 countries throughout the world.
• Fanconi Anemia Handbook!
• Fanconi Anemia: the Frohnmayer Family's Experience
• Hope for Henry - dedicated to education people about Fanconi anemia.
• What is Fanconi Anemia?
• Online Mendelian Inheritance in Man -- Fanconi Anemia Page
• Fanconi Anemia Mutation Database
• Stem Cell Transplantation (SCT) for Genetic Diseases -- Protocol at NIH for which some FA Patients are Eligible
• Hackensack University Medical Center
• Boston Children’s Hospital
• Children’s Hospital
• Genetics Links
• Human Genome Project/National Institutes of Health
• Blood - The Journal of Hematology
• Bone Marrow Registry
• International Cord Blood Foundation
• Cord Blood Registry (for profit, but will bank at risk families for free!
• MedLine

For books on this subject try searching the Barnes and Noble Bookstore. It's not "Books in Print" ...... But it's pretty Close!

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